There are 200 different pages at this Web Site for the use of patients with Gaucher's Disease and their doctors.
Most patients have Type 1 disease. But if you are looking for
information on Type 2 or Type 3 we now have a special home page for
Neuronopathic Gaucher Disease. However Type 3
patients should also read information on the main pages which is equally
applicable to them.
If you want to let us have your comments and
suggestions
send
us a message .
Opinions expressed here are not necessarily those of
the Gauchers Association.
Some of the older pages on this site are also available in Spanish. Some pages have also been translated into German and Italian and this is shown in the contents below. Some important articles are also available in Russian.
If you need an understandable but comprehensive introduction to the subject read Living with Gaucher Disease first. This is also available in Italian and Bulgarian as well as English, Spanish and Russian.
If you can't find what you want, try using the search facility.
My Gaucher Story: James
An eleven year old
tells his own story.
(December 2007).
Susan Lewis Memorial Fund
Jeremy Manuel gives
an update on plans to give grants to overseas clinicians for training in the
care of patients with Gaucher Disease.
(December
2007).
Protalix's new Gaucher Drug in Phase III Clinical
Trial
Another candidate for a new version of enzyme replacement therapy
which is now being given to patients in a trial.
(December
2007).
Amicus Reports Phase 1 Pharmacological Chaperone
Results
A possible way of making treatment with current drugs more
effective.
(December 2007).
Update on Shire Clinical Trials for New Enzyme
Results of the third year of Phase III clinical trials and a report on an
agreement with Amicus to develop Chaperone Compounds.
(December 2007).
European Cerezyme Access Programme (ECAP)
Selena Freisens explains the way in which patients in Central and Eastern
Europe can obtain free treatment with Cerezyme if it is not available through
the country's health service.
(December 2007).
Zavesca and bone disease
(December 2007).
A Template to Help Gaucher Patients Access
Insurance
(December 2007).
Travelling With ERT
Hints on how to fit in
treatment for longer trips away from home.
(December
2007).
Gauchers News December 2007
The full file of
the whole issue.
(December 2007).
Previous issues of Gauchers News and the alphabetical
index
Associations Around The World
A list of addresses,
phone numbers of Associations and contacts operating in 39 countries. Latest
addition or change: May 2005.
Physicians with experience of Gaucher
disease
European Gaucher
Alliance
The aims of the EGA are currently available in
English, French, Spanish, Italian, German, Dutch, Danish, Swedish, Norwegian,
Russian, Polish, Hungarian, Romanian, Hebrew, Czech, Bulgarian, Serbian,
Slovenian and Finnish translations.
Gaucher's Association Aims and Disclaimer
Contenido en español (Spanish translations).
If this information has helped you, why not help us by sending a donation to enable us to continue our work:
To make a donation to the Gauchers Association, please contact us and we will tell you where to send your cheque.
DISCLAIMER
Please note that anyone who suffers from Gaucher's
Disease or thinks they suffer from it should consult a
physician who is experienced with
dealing with the condition. The information included on these pages is intended
to be useful to patients and physicians but it is no substitute for skilled
medical advice.
Gauchers Association Web pages are designed and maintained by Wisebuy Publications.
This page last updated 8 December
2007.
© All pages copyright Gauchers Association Ltd 1996-2008.
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